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PATIENTS TALK


Jessie Talks About What It Takes to Be A Patient.
WELCOME
The Prepared Patient Forum resources make it easier to find good care and get the most out of it. The Forum is part of the Center for Advancing Health (CFAH). CFAH has advocated for patients and health care consumers since 1992. We accept no advertising or corporate sponsors. Learn more...
WHAT IT TAKES
Carolyn Thomas
Carolyn Thomas		 As I like to remind my women’s heart health presentation audiences, I am not a physician. I’m not a nurse. I am merely a dull-witted heart attack survivor. I also warn them that a lot of what I’m about to say to them is already available out there, likely printed on some wrinkled-up Heart and Stroke Foundation brochure stuffed into the magazine rack at their doctor’s office.
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HBNS Staff
HBNS Staff

Prepared Patient: Sick at Work (Updated Version)

Friday, 05.25.2012   11:17 AM
The typical week of sick time provided most employees may be enough if you get hit with the flu or a cold. But what happens when you have a chronic condition, such as Crohn's disease, multiple sclerosis or diabetes, and the time off you need exceeds your number of sick days? What protections do you have if you require major surgery?
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Trudy Lieberman
Trudy Lieberman		 Virginia was particularly concerned that she would not get medical treatment after she turns 75. She had heard at that age, “they send you a letter. They are going to start sending you literature on death.”
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Jessie Gruman
Jessie Gruman		 The pianist was playing Chopin in the beautiful but deserted four-story lobby of the new hospital where my father was being cared for. The contrast between that lovely lobby and the minimal attention my dad received over the weekend, combined with a report about the architectural “whimsy" of a new hospital at Johns Hopkins make me cranky.
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Barbara Bronson Gray
Barbara Bronson Gray		 Turns out we're a nation of doctor pleasers when it comes to health care. A recent study found that patients avoid challenging their physicians because they're afraid of getting the "difficult patient" label.
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Jessie Gruman
Jessie Gruman

Advice Urges Wider Sharing of Heart Care Decisions

Wednesday, 05.16.2012   1:25 PM
The goal is "not only living long, it's living well. People often make decisions about the 'long' without even considering the 'well,'" said Jessie Gruman, president of the Center for Advancing Health, a patient advocacy group.
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GOOD BEHAVIOR

Jessie Gruman
CFAH President

Interview Series: What’s Engagement Now? Expert Sarah Greene Discusses Extreme Openness: Sparking Progress through Patients, Researchers & Clinicians

 Sarah GreeneI discovered somewhat by accident – early in my career -- that science makes faster progress and produces better results if more people with a range of different expertise are brought together. In the past 10 years, I’ve extended this belief to patients’ participation in their care...Read More

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1st Person

Small Steps: Adapting to New Technology for Better Health

Joan RederJoan Reder, a person with diabetes, spends her days working as a medical transcriptionist, so you might assume she’d be pretty comfortable with anything involving medicine. But recently, the 59 year-old was faced with the daunting prospect of converting from her familiar daily insulin injections to an insulin pump, which would continuously monitor her blood glucose and deliver insulin to her body when needed....Read More

AFTERSHOCK
AfterShock:
What to Do When the Doctor Gives You – Or Someone You Love – A Devastating Diagnosis


For more information visit: www.aftershockbook.com